Finalist
IBD Registry Industry Working Group
Summary of work
The Inflammatory Bowel Disease (IBD) Registry was set up to find out more about the long-term impact of the condition, and collect better information on treatments and outcomes.
By gathering data electronically, the Registry provides information that IBD teams can use locally to support patient care, and feed into a national database for benchmarking, quality improvement and research.
By setting up an Industry Working Group, Dovetail brought together a broad set of skills to find innovative solutions to some of the Registry’s challenges. The small working group provided an opportunity for industry expertise to complement the clinical skills of the Registry, and acted as an efficient communication channel to link with and represent all the IBD companies.
The Industry Working Group has shown that industry has much more to offer than sponsorship and harnessed strategic industry skills to help solve challenging Registry problems together. The industry partners are getting as much out of the partnership as the IBD Registry team, learning from each other and gaining a better appreciation of the pressures and challenges within the NHS.
Judges’ comments
Dovetail and the British Society of Gastroenterology demonstrated successful collaboration across interested pharma stakeholders to form the Industry Working Group and it is great to see NHS collaboration and shared understanding. Scalability was clearly challenging, but was well addressed.
